I was introduced to a really clever idea recently. You know how we are always looking for stories to help us or others understand conditions and diagnoses? It’s a fairly common question at all libraries, but especially public libraries (“Can you help me find a book on XXX?”). Librarians have all kinds of tips and tricks for finding recommended and high quality books on both common and obscure topics. Reading lists for patients are created by libraries and healthcare facilities, as well as both professional and advocacy organizations. The twist that made this especially intriguing was a patient advocacy organization using social media to crowdsource the development of a booklist on their condition of interest, in this case, dementia and Alzheimer’s. The main hashtag used is #dembk, but there also exists a bookclub tag for the same community (#DemBkClub) as well as folk who simply use the combination of #dementia #books.
This is how it started.
Hi @pfanderson we're asking people to tweet us their favourite books with a dementia related theme. Do you have any?
— Diverse Alzheimers (@DiverseAlz) May 14, 2014
— P. F. Anderson (@pfanderson) May 17, 2014
— Diverse Alzheimers (@DiverseAlz) May 17, 2014
This was when I realized this was “a thing,” and started looking for more. He’s the list they came up with for Dementia Awareness Week, and some other outcomes from the Twitter conversations around this topic.
— Weston and Worle DAA (@WandWDAA) May 22, 2014
Books About Dementia for All Ages to Read: http://www.dementiachallengers.com/books-about-dementia.html
— Linda Bernstein (@wordwhacker) May 22, 2014
Here are some of the conversations and range of tweets I found sharing books on dementia.
— DementiaBook Club (@Dembkclub) May 26, 2014
— DementiaBook Club (@Dembkclub) May 22, 2014
— DementiaBook Club (@Dembkclub) May 19, 2014
— Dr Siobhan O'Dwyer (@Siobhan_ODwyer) May 21, 2014
Wondering how far books can help to inform also and if they can /will encourage people to talk #diversealz
— Diverse Alzheimers (@DiverseAlz) May 22, 2014
— Sophie Dishman (@SophieSW14) May 22, 2014
— YoungDementia UK (@YoungDementiaUK) May 14, 2014
— Diverse Alzheimers (@DiverseAlz) May 12, 2014
— Romina Oliverio (@RominaOliverio) May 14, 2014
— Dementia 4 Schools (@dementia4school) May 14, 2014
— Ming Ho (@Minghowriter) May 20, 2014
— Alzheimers Support (@SandyAlz) May 20, 2014
— Amygdaloid Spew (@AmygdaloidSpew) April 15, 2014
— Share-Time Pictures (@Activities4Care) May 8, 2014
— Lovely Book Comments (@MoogMeBooks) May 13, 2014