Request for Information for NIH

Even though the government is currently shut down, there are some outstanding Request for Information (RFI) notices out there for which the National Institutes of Health are seeking public comments.  These RFIs provide opportunities for you to have your comments and thoughts heard on specific topics, so let your voice be heard.  Here are some current RFIs still seeking comments:

Request for Information: Input on the Draft NIH Genomic Data Sharing Policy
Notice Number: NOT-OD-13-119

Deadline for comments: November 20, 2013

Background: NIH’s mission is to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability. The draft GDS Policy supports this mission by promoting the sharing of genomic research data, which maximizes the knowledge gained. Not only does data sharing allow data generated from one research study to be used to explore a wide range of additional research questions, it also enables data from multiple projects to be combined, amplifying the scientific value of data many times. Broad research use of the data enhances public benefit by helping to speed discoveries that increase the understanding of biological processes that affect human health and the development of better ways to diagnose, treat, and prevent disease….  Read the full notice for more information.

Request for Information on Proposed NCI Policy Ensuring Public Availability of Results from NCI-Supported Clinical Trials
Notice Number: NOT-CA-13-019

Deadine for comments: November 20, 2013

Background: NCI, a component of the National Institutes of Health (NIH), is dedicated to improving the health of Americans by conducting and funding biomedical research through an extensive portfolio of clinical trials and clinical trials-related research. A fundamental premise of all NIH-funded research is that the results of such work must be shared in order to contribute to the general body of science and ultimately, to the public health. Grantee institutions are expected to make the results and accomplishments of their activities available to the research community and to the public at large.

NIH funding recipients ensure the timely disclosure of their scientists’ research findings through publications, presentations at scientific meetings as well as by sharing research tools, depositing information into databases and materials into repositories and through other means. NIH has many policies in place to educate funding recipients about their responsibility to share the results of NIH-funded work, and to facilitate such sharing…. Read the full notice for more information.

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